What autoimmune disease are you struggling with?? Do you have good doctors? Do you have a good support system?
I got diagnosed with a rare tumor in my eye almost 3 years ago.The name of this tumor is “Orbital pseudo-tumor”. I was told that this tumor was caused by an autoimmune disease. They have yet to find out which autoimmune disease caused it. I will have it for the rest of my life. They think there is one in my other eye now too. The good news is that it’s not cancerous and it’s finally in remission now!It took a long time to put it in remission.
I had to do 1000 mg of Prednisone daily and 1000 mg of steroids through an IV 3 times a week. I also had to do cancer treatments of Rituximab. I can’t stand my doctors! I’m just going be honest, they’re assholes! Sometimes I don’t think they know what the hell they’re doing. I felt like a celebrity when I had to stay in the hospital because not many people have heard of this tumor, and so many doctors from all over came to see and talk with me. I had to keep telling my story over and over to each of them. It was exhausting!
Even though the tumor/tumors are in remission, I still struggle everyday with the horrible symptoms. The doctors say, that I will have to deal with all the horrible symptoms for the rest of my life. They said, it’s just a part of the disease. I am blessed though! I have a wonderful support system and the tumors are not cancerous! I hope and pray they find out what autoimmune disease I have….
Do you suffer from and autoimmune disease? I would love to hear your story too.